Cherry Rudge (Rainbow Red), Jo Cooke (Hoarding Disorders UK CIC) and Heather Matuozzo (Clouds End CIC) are knowledgeable declutterers. Between them, they have over 20 years’ experience of working with people with extreme cluttering and hoarding problems. They regularly deliver training, coaching and advice to a variety of organisations including housing associations, mental health teams, charities, fire services and social care teams and recently flew transatlantic to further their own professional development and bring their learning back to the UK.
APDO members attend MHASF’s Institute for Compulsive Hoarding and Cluttering Conference 2018
For the three of us, the idea of being able to talk about clutter, hoarding and “stuff” for an entire week was heaven. Forget about drugs, sex and rock and roll – clutter was the buzz word and we used every opportunity to tell folks what we do and why we were visiting California.
Clinical studies of hoarding disorders began to be published in the USA about 20 years ago, so it was with great excitement that the three of us set out from Heathrow Airport (in the snow) on Monday 19th March 2018 to attend the 18th annual Mental Health Association of San Francisco (MHASF) conference on Cluttering and Hoarding – Thinking Outside the Boxes: Innovation in Action.
MHASF is comprised of a diverse team of peers, supporters, advocates, family members, and providers dedicated to taking the peer and recovery to the next level.
The conference was held at the University of California, Berkeley, and was attended by over 100 people from across the USA and Canada, including clinicians, peer group members, social workers, people with hoarding behaviours, housing officials and professional organisers – all as passionate and as keen to expand our knowledge of the subject as we are!
Wednesday’s fascinating training day was by Dr Michael A. Tompkins (author of “Digging Out” and “The Clinician’s Guide to Severe Hoarding – A Harm Reduction Approach”), and covered the basics of two major topics important to anyone working directly with clients dealing with hoarding challenges: cognitive behavioural therapy (CBT) and motivational enhancement.
Interestingly, Dr Tompkins believes that (a) change is a state, not a trait, and (b) it is depression that underlies hoarding behaviours, with loss triggers being secondary to that.
Day one of the conference opened with a wonderful keynote address – “DisordR, The Play”, a solo show brilliantly written and performed by Hilary Kacser, an actor who had travelled from Washington DC. It was very clever to start the discussions using visual creative art-based interpretation, devised by a person with lived experience, who also works in the theatre.
The play introduced us to self-confessed hoarder Pakrat Patty, and used humour to illuminate mental health, and the interactions with people who she met during her journey to recovery.
There followed several breakout sessions which divided the attendees into four groups:
- Public Health
Over the two days, the aim of each of these workshops was to find three key areas of concern and then spend two further sessions seeking potential solutions for those concerns.
There were various options for the afternoon sessions on Day One:
- Resilience and Overcoming Hoarding, by Satwant Singh (Nurse Consultant in CBT and Mental Health, and a Clinical Lead for a primary care psychological service in London).
- Building peer supports on the stages of change continuum – David Bain + peers from MHASF.
- Listening and learning from participants in the Help for Hoarding Treatment study – Monka Eckfield (Qualitative PCORI Study, San Francisco). Peer-facilitated support groups used the “Buried in Treasures” work-book over 16 weeks, and therapist-lead CBT groups, which included home visits over the same amount of time.
In the afternoon, we attended the Experience Compassion Focussed Therapy (CFT) for Hoarding session, presented by Chia-Ying Chou (MHA Therapy Group, San Francisco). She explored what compassion is – i.e. a sensitivity to suffering and a willingness to try and alleviate it or prevent it – and looked at wisdom, strength, commitment and warmth and the need to use self-compassion.
Meanwhile, the selective sessions we sadly missed were:
- It takes a village – Nancy Trout, Prairie View, Winston, Kansas. Discussed how she created a multi-agency taskforce, drawing on every aspect of village life.
- Journal writing – the techniques, the purpose the benefits – David Bain – how to keep a hoarding action journal
- Legal aspects of hoarding – Kellie Morgantini (Legal Services for Seniors, Monterey, CA)
The evening’s social event gave us the perfect opportunity to network and develop strong relationships with delegates from across the US and Canada. They were most impressed when we explained how the UK’s annual Hoarding Awareness Campaign has helped increase understanding of hoarding behaviours and reduce the stigma associated with them.
Day two started with all three of us attending a breakout session by Donald Davioff and Kay Jewels (McLean Hospital/Harvard Medical School, MA) – “A Neurocognitive Approach to Hoarding Disorder”.
After an insightful video about the MHASF, the final key-note speech on the final day was “New Developments in Hoarding Research: a novel approach using virtual reality” by Hanna McCabe-Bennett from Ryerson University, Toronto.
Through a series of room images, two groups (individuals with hoarding behaviours and then another group without hoarding behaviours) were tested for their levels of discomfort, versus the levels of items in the room. In another experiment people were invited to choose as many items as they liked from a virtual reality thrift store (charity shop). These were then restricted to how many can be fitted into a trolley and then how many of those items could they fit into a bag.
They then changed the mood of the people by reading a script to induce anthropomorphism which, it was found, increased the difficulty for the hoarders in discarding even virtual items.
After a couple of days sightseeing, we returned from San Francisco more inspired than ever, and fired up for UK Hoarding Awareness Week (14th – 18th May 2018) and the National Hoarding Conference on 14th May. Later in the year we are also looking forward to the International Hoarding, Health & Housing Conference in Edinburgh on 4th October, organised by Life Pod CIC. Hope to see you there, or maybe at the MHASF conference next year!
If you need advice on hoarding or want to find out more about APDO, please visit the APDO website for further information or to find your nearest professional organiser.